Sponsored by:
Senator LORETTA WEINBERG
District 37 (Bergen)
Senator DAWN MARIE ADDIEGO
District 8 (Atlantic, Burlington and Camden)
Assemblyman DANIEL R. BENSON
District 14 (Mercer and Middlesex)
Assemblywoman VALERIE VAINIERI HUTTLE
District 37 (Bergen)
Assemblyman RAJ MUKHERJI
District 33 (Hudson)
Co-Sponsored by:
Assemblywomen Timberlake and McKnight
SYNOPSIS
Revises definition of hemophilia and expands hemophilia treatment program.
CURRENT VERSION OF TEXT
As reported by the Senate Health, Human Services and Senior Citizens Committee on January 17, 2019, with amendments.
An Act concerning the hemophilia treatment program and amending P.L.1972, c.124.
Be It Enacted by the Senate and General Assembly of the State of New Jersey:
1. Section 1 of P.L.1972, c.124 (C.26:2-90) is amended to read as follows:
1. For purposes of [this act] P.L.1972, c.124 (C.26:2-90 et seq.):
1["hemophilia"] “Hemophilia”1 means a bleeding tendency resulting from a genetically determined [deficiency factor in the blood], hereditarily determined, or acquired factor deficiency in the blood.
“Qualitative platelet disorders” means conditions resulting from genetically determined, hereditarily determined, or acquired defects or abnormalities in blood platelet functions or structures.
1[“von] “Von1 Willebrand disease” means a bleeding tendency resulting from a genetically determined, hereditarily determined, or acquired deficiency of the von Willebrand factor in the blood.
(cf: P.L.1972, c.124, s.1)
2. Section 2 of P.L.1972, c.124 (C.26:2-91) is amended to read as follows:
2. The State Department of Health hereafter referred to as the department shall establish a program for the care and treatment of persons suffering from hemophilia, qualitative platelet disorders, and von Willebrand disease. This program shall assist persons who require continuing treatment with blood and blood derivatives to avoid crippling, extensive hospitalization and other effects associated with [this] these critical chronic bleeding [condition] conditions, but who are unable to pay for the entire cost of such services on a continuing basis despite the existence of various types of hospital and medical insurance coverages, [medicare, medicaid,] Medicare, Medicaid, and other government assistance programs, and private charitable assistance programs.
(cf: P.L.1972, c.124, s.2)
3. Section 3 of P.L.1972, c.124 (C.26:2-92) is amended to read as follows:
3. The department shall:
a. Develop standards for determining eligibility for care and treatment under this program;
b. Assist in the development and expansion of programs for the care and treatment of persons suffering from hemophilia, qualitative platelet disorders, and von Willebrand disease, including self-
administration, prevention, and home care and other medical and dental procedures and techniques designed to provide maximum control over bleeding episodes typical of [this condition] these conditions;
c. Extend financial assistance to persons suffering from hemophilia, qualitative platelet disorders, and von Willebrand disease in obtaining blood, blood derivatives 1,1 and concentrates, and other efficacious agents for use in hospital, medical 1,1 and dental facilities, and at home, or participate in the cost of blood processing to the extent that such support will facilitate the supplying of blood, blood derivatives 1,1 and concentrates and other efficacious agents to [hemophiliac] patients at an economical cost, thus increasing the effectiveness of the moneys appropriated to carry out the provisions of [this act] P.L.1972, c.124 (C.26:2-90 et seq.);
d. Institute and carry on educational programs among patients, physicians, dentists, hospitals, public health departments, and the public concerning hemophilia, qualitative platelet disorders, and von Willebrand disease, including dissemination of information and the conducting of educational programs concerning the methods of care and treatment of persons suffering from [this condition] these conditions; and
e. Promulgate all rules and regulations necessary to effectuate the purposes of [this act] P.L.1972, c.124 (C.26:2-90 et seq.).
(cf: P.L.1972, c.124, s.3)
4. This act shall take effect immediately.