ASSEMBLY, No. 5375

STATE OF NEW JERSEY

219th LEGISLATURE

INTRODUCED FEBRUARY 23, 2021

 


 

Sponsored by:

Assemblyman †ROY FREIMAN

District 16 (Hunterdon, Mercer, Middlesex and Somerset)

Assemblywoman† VALERIE VAINIERI HUTTLE

District 37 (Bergen)

 

 

 

 

SYNOPSIS

†††† Requires Palliative Care and Hospice Care Advisory Council to conduct study on impact of palliative and hospice care on patientís family.

 

CURRENT VERSION OF TEXT

†††† As introduced.

††


An Act concerning palliative and hospice care and amending P.L.2019, c.227.

 

†††† Be It Enacted by the Senate and General Assembly of the State of New Jersey:

 

†††† 1.††† Section 4 of P.L.2019, c.227 (C. 26:2H-5r) is amended to read as follows:

†††† 4.††† a.† There is established in the Department of Health the Palliative Care and Hospice Care Advisory Council.†

†††† b.††† It shall be the duty of the council, in collaboration with the Cancer Institute of New Jersey, to implement the provisions of P.L.2019, c.227 (C.26:2H-5o et seq.), including establishing the Palliative Care and Hospice Care Consumer and Professional Information and Education Program pursuant to section 2 of P.L.2019, c.227 (C.26:2H-5p), developing and facilitating the provision of information about palliative care and hospice care for the purposes of section 3 of P.L.2019, c.227 (C.26:2H-5q), and developing resources and programs to facilitate access to palliative care and hospice care services for patients and residents.† The council shall also conduct a study of the impact of palliative care and hospice care on the patientís family, which shall include an evaluation of the familyís ability to cope with the terminal phase of the patient and to adapt after the patientís death.† No later than 24 months after the effective date of P.L. †††, c. †††(C.††† ††††) (pending before the Legislature as this bill), the council shall submit a report to the Governor and, pursuant to section 2 of P.L.1991, c.164 (C.52:14-19.1), to the Legislature, outlining the results of the study and offering any legislative or policy recommendations designed to improve the support of families of patients who are receiving palliative care or hospice care.

†††† c. †(1) †The council shall be comprised of eleven members, to be appointed as follows: one member of the Senate appointed by the Senate President; one member of the General Assembly appointed by the Speaker of the General Assembly; three public members appointed by the Senate President; three public members appointed by the Speaker of the General Assembly; and three public members appointed by the Governor.

†††† (2)†† In selecting the public members, the Senate President, the Speaker of the General Assembly, and the Governor shall seek to include persons who have experience, training, or academic background in issues related to the provision of palliative care or hospice care, with an emphasis on addressing physical, emotional, social, and spiritual needs and facilitating patient autonomy, access to information, and choice.† Seven of the nine public members shall

be comprised as follows: one physician, one advanced practice nurse or physician assistant, one nurse, one social worker, one chaplain, one pediatric oncologist, and one hospice administrator.† The public members shall be board certified or have a hospice and palliative care certification, as appropriate to their discipline.† Selections of public members may be made in consultation with: the State Board of Medical Examiners, the New Jersey Board of Nursing, the Physician Assistant Advisory Committee, the Board of Pharmacy, the New Jersey Hospital Association, the Health Care Association of New Jersey, the Medical Society of New Jersey, the New Jersey Association of Osteopathic Physicians and Surgeons, the New Jersey State Nurses Association, the Home Care and Hospice Association of New Jersey, Leading Age New Jersey, the New Jersey State Society of Physician Assistants, and the New Jersey Hospice and Palliative Care Organization.

†††† d.††† All appointments shall be made within 30 days after the effective date of P.L.2019, c.227 (C.26:2H-5o et seq.).†

†††† e.†††† The public members shall serve for a term of five years; but, of the members first appointed, three shall serve for a term of three years, three for a term of four years, and three for a term of five years.† Members are eligible for reappointment upon the expiration of their terms.† Vacancies in the membership shall be filled in the same manner as the original appointments.†

†††† f.†††† The council shall organize as soon as is practicable upon the appointment of a majority of its members, and shall select a chairperson from among the members.

†††† g.††† The members of the council shall serve without compensation but may be reimbursed, within the limits of funds made available to the council, for necessary travel expenses incurred in the performance of their duties.†

†††† h.††† The council shall be entitled to call to its assistance and avail itself of the services of the employees of any State, county, or municipal department, board, bureau, commission, or agency as it may require and as may be available for its purposes.

†††† i.†††† The Department of Health shall provide staff support to the council.

(cf: P.L.2019, c.227, s.4)

 

†††† 2.††† This act shall take effect immediately.

 

 

STATEMENT

 

†††† This bill expands the duties of the Palliative Care and Hospice Care Advisory Council, established pursuant to section 4 of P.L.2019, c.227 (C. 26:2H-5r), by requiring the council to conduct a study on the impact of palliative care and hospice care on a patientís family.† Under the bill, the study is required to include an evaluation of the familyís ability to cope with the terminal phase of the patient and to adapt after the patientís death.† No later than 24 months after the effective date of the bill, the council is required to submit a report to the Governor and to the Legislature outlining the results of the study and offering any legislative or policy recommendations designed to improve the support of families of patients who are receiving palliative care or hospice care.